Mark had another good day today. Normally this would be chemo day, but he got postponed until Jan 2nd this week. At least we can celebrate the New Year with Mark feeling like his old self. We visited with Eugenie and Mike today and the kids all played. It was a pretty day for outside play finally (no rain). Eugenie and I re-upholstered the dining room chairs.
We heard from Memorial Sloan Kettering hospital in New York City. This is another large cancer center like MD Anderson. They are happy to accept Mark as a patient. We faxed his records there today to our contact person. They want to wait until chemo round number 6 and the repeat CT scan before we go up to New York as this will help them determine which doctor Mark will see.
We plan to have a quiet evening at home with snacks and fondu for the kids. We will stay up to midnight to celebrate the New Year and hope for healing and recovery. Happy New Year to all!!!!
Monday, December 31, 2007
Sunday, December 30, 2007
December 30
Mark is doing well. He has had a great few days. We have been visiting with family. Mike made it in from Austin, TX on Friday night and we spent Saturday in Columbus taking the kids to Hollywood Connection and out to eat pizza for Ryan's birthday. We had an adult night out later that evening and 6 of us went to eat sushi and later to play pool. It was a great evening and I think we all had fun. Mark was back to his old self. We are truly enjoying these days that he feels good.
Again we were told no from MD Anderson. They will not take Mark as a patient unless he is considered a treatment failure or decides to relocate there for all of his treatment. We were hoping for a second opinion. We may be going to Sloan Kettering or another large cancer center to do this.
Continue to pray for Mark's healing and strength. We feel truly blessed to have such great friends and family. We're praying for healing in the New Year and an Oklahoma Sooner win over West Virginia would also be nice. God bless you all!!
Again we were told no from MD Anderson. They will not take Mark as a patient unless he is considered a treatment failure or decides to relocate there for all of his treatment. We were hoping for a second opinion. We may be going to Sloan Kettering or another large cancer center to do this.
Continue to pray for Mark's healing and strength. We feel truly blessed to have such great friends and family. We're praying for healing in the New Year and an Oklahoma Sooner win over West Virginia would also be nice. God bless you all!!
Thursday, December 27, 2007
December 27
Hi to all. We hope everyone had a Merry Christmas. Ours was good. We went to Christmas Eve vigil mass and then spent Christmas day at home with the kids. They actually slept until 7am. It was great watching the excitement in the kids eyes and faces as they opened gifts and saw what Santa brought them. We really enjoyed the morning and Mark was feeling good. We had a small dinner (Tur duk hen) and some side dishes mid afternoon. Mark was worn out and had some tummy issues in the afternoon, so he spent the rest of Christmas in bed.
Matt and Angie drove down from Oklahoma (Mark's twin and fiance') yesterday and late yesterday evening Eugenie, Ryan and Kaylie flew in from Austin. Mark, Matt and Calen drove to Birmingham to pick them up and didn't get home until after midnight. They were up until 2:30 visiting. Mark woke today not feeling so good and is resting in bed now. Hopefully he will rebound so that he can spend some time visitng with the family while they're here.
Mark's next chemo was postponed to mid week, so he'll go in Wednesday Jan 2nd and finish Jan 4th. That will be round number 5. After round number 6, we will have the repeat CT scan in Birmingham. I am also working on the MD Anderson referral now. Hopefully by the end of the day, we'll know something about our travel plans for Houston.
Take care and God bless!!
Matt and Angie drove down from Oklahoma (Mark's twin and fiance') yesterday and late yesterday evening Eugenie, Ryan and Kaylie flew in from Austin. Mark, Matt and Calen drove to Birmingham to pick them up and didn't get home until after midnight. They were up until 2:30 visiting. Mark woke today not feeling so good and is resting in bed now. Hopefully he will rebound so that he can spend some time visitng with the family while they're here.
Mark's next chemo was postponed to mid week, so he'll go in Wednesday Jan 2nd and finish Jan 4th. That will be round number 5. After round number 6, we will have the repeat CT scan in Birmingham. I am also working on the MD Anderson referral now. Hopefully by the end of the day, we'll know something about our travel plans for Houston.
Take care and God bless!!
Friday, December 21, 2007
December 21, Mark's birthday
Mark had a great day today. He slept in and woke feeling pretty good and actually had an appetite. We took him out to Starbucks for a muffin and coffee and he was in heaven. He drank the coffee slowly to savor each sip. Emily got a coffee cup with milk in it so she looked like a "big girl" while she played with her princess figurines. We ran around a little in Tiger Town after the breakfast outing and came home for a bit. We had birthday gifts for Mark when we returned.
Mark spent the afternoon playing 9 holes of golf with Duane Brandon at the AU club. He really enjoyed the golf. By the last 2 holes, his hands were hurting some from the cool air, but overall Mark enjoyed the day. He said it was like old times cutting up with Duane. They didn't really even keep score. Just playing for fun.
This evening we took Mark out to the Outback for dinner. Mark chose fish (I think the kids talked him into the restaurant because steak is their favorite). Dinner was great. Calen is spending the night with a friend and Colton has a friend over for the night. We plan to watch a movie this evening before bed.
This is definitely the best day Mark has had in quite a while. I don't know if it was because of his birthday or if he's just starting to feel better, but it was great having a day like today. His next chemo was scheduled for New Year's Eve and would end on Jan 2nd. Mark's infusion nurse asked if we wanted to switch days that week, so we're going in Jan 2nd through the 4th so that he will be feeling good through New Years.
Take care everyone and to all of you travelling through the holidays, be safe. God bless!!!!!
Mark spent the afternoon playing 9 holes of golf with Duane Brandon at the AU club. He really enjoyed the golf. By the last 2 holes, his hands were hurting some from the cool air, but overall Mark enjoyed the day. He said it was like old times cutting up with Duane. They didn't really even keep score. Just playing for fun.
This evening we took Mark out to the Outback for dinner. Mark chose fish (I think the kids talked him into the restaurant because steak is their favorite). Dinner was great. Calen is spending the night with a friend and Colton has a friend over for the night. We plan to watch a movie this evening before bed.
This is definitely the best day Mark has had in quite a while. I don't know if it was because of his birthday or if he's just starting to feel better, but it was great having a day like today. His next chemo was scheduled for New Year's Eve and would end on Jan 2nd. Mark's infusion nurse asked if we wanted to switch days that week, so we're going in Jan 2nd through the 4th so that he will be feeling good through New Years.
Take care everyone and to all of you travelling through the holidays, be safe. God bless!!!!!
Thursday, December 20, 2007
December 20
Mark got quite a bit of rest today. The boys spent all day at the Brooks' house while Ronda was at work. Emily went to daycare and had cupcakes and party favors for her birthday. This afternoon, Mark had a visit from Janine Babbitt from St. Michael's. She brought over a HUGE card signed by many of the CFF children and families. We spent this evening reading the well wishes and signatures. It was great. They also sent over a gift basket of goodies and some food. Thanks so much!!!
Mark also got a visit from Beverly Marshall who baked a wonderful lasagna and some mac and cheese for the kids. It was great not having to think about dinner tonight. After dinner, we had Emily's cake and ice cream. She enjoyed opening her gifts for her birthday as well.
Mark hasn't been out much to socialize with the family. He is just feeling too puny, but did come out for Emily's birthday gathering and we took pictures. It is certainly hard on him as he wants so much to feel good. Tomorrow is Mark's birthday and we're hoping he is feeling like getting out and doing something. We'll just play it by ear. We may decide to take Emily in to daycare to help diminish the activity around the house if Mark isn't feeling well.
Take care everyone and God bless!!!
Mark also got a visit from Beverly Marshall who baked a wonderful lasagna and some mac and cheese for the kids. It was great not having to think about dinner tonight. After dinner, we had Emily's cake and ice cream. She enjoyed opening her gifts for her birthday as well.
Mark hasn't been out much to socialize with the family. He is just feeling too puny, but did come out for Emily's birthday gathering and we took pictures. It is certainly hard on him as he wants so much to feel good. Tomorrow is Mark's birthday and we're hoping he is feeling like getting out and doing something. We'll just play it by ear. We may decide to take Emily in to daycare to help diminish the activity around the house if Mark isn't feeling well.
Take care everyone and God bless!!!
Wednesday, December 19, 2007
December 19
Today marked the end of chemo round number 4. I feel as if we're in a boxing match. Mark is doing as well as can be expected. He is having some GI issues, but they don't seem as bad as with the last round. He can't seem to drink much because of the way fluids taste to him, but he feels thirsty all the time. The appetite is not great, but he's trying to get a few things down and is trying to remain strong. He is certainly keeping his head up through all of this.
Today marked the end of school for the boys until Jan 7th. In some ways it will be quieter, but in others it will be busier. Tonight they are both spending the night at the Brooks' house. Tomorrow is Emily's birthday, so we'll do presents and cake (hopefully since I forgot to order one and will be calling around in the morning trying to get one) after I get off work.
We are anxiously awaiting news on an appointment at MD Anderson. We will also be visiting with the Birmingham surgeon again in January and repeating the full body CT scan as well. Our appointment with the genetics department at UAB got moved to Jan 24th. They will be studying Mark's case because he is so young at diagnosis. Our children may be at risk for this disease and may need to start screening in their teens. They will go through an in depth family history and probably do blood work.
Continue to pray for Mark. The prayers and support have gotten us through to this point. We are truly blessed to have such great friends and family. God bless you all!!
Today marked the end of school for the boys until Jan 7th. In some ways it will be quieter, but in others it will be busier. Tonight they are both spending the night at the Brooks' house. Tomorrow is Emily's birthday, so we'll do presents and cake (hopefully since I forgot to order one and will be calling around in the morning trying to get one) after I get off work.
We are anxiously awaiting news on an appointment at MD Anderson. We will also be visiting with the Birmingham surgeon again in January and repeating the full body CT scan as well. Our appointment with the genetics department at UAB got moved to Jan 24th. They will be studying Mark's case because he is so young at diagnosis. Our children may be at risk for this disease and may need to start screening in their teens. They will go through an in depth family history and probably do blood work.
Continue to pray for Mark. The prayers and support have gotten us through to this point. We are truly blessed to have such great friends and family. God bless you all!!
Tuesday, December 18, 2007
December 18, Chemo
Mark is more than half way through this chemo infusion and is glad of that. We are counting down the hours until he is unhooked. This is the first day he was left by himself on chemo. Ronda is back at work and Mark's parents are back home. He did really well. Ronda came home at lunch to check on him and make sure he had something to eat and drink. He didn't get up much today which isn't unusual. He did insist on taking Calen to basketball practice this evening.
We are gearing up for the birthdays at the end of the week. Emily is getting excited. She has been good about leaving the presents alone so far, but can't wait to tear into the birthday stuff on Thursday.
Thanks again to everyone for your continued love and support during this time. We appreciate it more than you know. Take care and God bless!!
We are gearing up for the birthdays at the end of the week. Emily is getting excited. She has been good about leaving the presents alone so far, but can't wait to tear into the birthday stuff on Thursday.
Thanks again to everyone for your continued love and support during this time. We appreciate it more than you know. Take care and God bless!!
Monday, December 17, 2007
December 17, Chemo treatment number 4
Mark received chemo number 4 today. This is the second chemo regimen with the added Avastin. He is doing well. Of course he came home with the infusion pump and will get the continuous chemo until Wednesday afternoon. The last chemo really wiped him out, so we're hoping and praying that this one is better. We at least are learning what to expect by now. His blood counts have remained good. They will redraw his cancer marker (CEA) and do more extensive blood work with the next chemo.
Ronda has been doing more reading and digging into Mark's type of cancer. The metastatic disease to the peritoneum is definitely posing the biggest concern for Mark. We have found some articles and are anxious to revisit with the surgeon at UAB to discuss our plan and make sure we're on the right track. We are also getting anxious to get the MD Anderson referral going to have another set of eyes looking at the data as well as Mark.
Emily will celebrate her 3rd birthday on Thursday. She will have cupcakes with the kids at Bonnie's Kids and we will just have family for presents in the evening. We planned a party for her friends on January 5th after the Christmas holiday is over. Mark's 36th birthday is Friday and I keep teasing him that I will take him out for a Milky Way and a cup of Starbucks coffee. That is what he is craving now and isn't supposed to have. We will definitely splurge for his special day.
We won't be travelling back to Oklahoma this year for Christmas. This will be our first year ever not to do that. I think we will enjoy the quiet time with the children though, although we'll miss everyone back home.
God bless you all!!!
Ronda has been doing more reading and digging into Mark's type of cancer. The metastatic disease to the peritoneum is definitely posing the biggest concern for Mark. We have found some articles and are anxious to revisit with the surgeon at UAB to discuss our plan and make sure we're on the right track. We are also getting anxious to get the MD Anderson referral going to have another set of eyes looking at the data as well as Mark.
Emily will celebrate her 3rd birthday on Thursday. She will have cupcakes with the kids at Bonnie's Kids and we will just have family for presents in the evening. We planned a party for her friends on January 5th after the Christmas holiday is over. Mark's 36th birthday is Friday and I keep teasing him that I will take him out for a Milky Way and a cup of Starbucks coffee. That is what he is craving now and isn't supposed to have. We will definitely splurge for his special day.
We won't be travelling back to Oklahoma this year for Christmas. This will be our first year ever not to do that. I think we will enjoy the quiet time with the children though, although we'll miss everyone back home.
God bless you all!!!
Friday, December 14, 2007
December 14
We made our trip to Callaway Garden's Fantasy of Lights tonight along with Duane, Stacy and David Brandon. The weather was perfect and we all had a great time. We went early to avoid the big crowd, so we were all starving after the trolley ride and went to Logan's in Opelika for a late dinner. Mark enjoyed the evening. We were certainly blessed with Mark feeling well and great weather, so we couldn't have been happier. Thanks to the Brandons for the wonderful evening.
Mark and I got a little Christmas shopping done earlier today since it is the last day I am off when the kids will be in school and we can get away without them. We didn't finish, but got quite a bit done.
Brent and Kathy made it back to Oklahoma safely. They were relieved to find their house intact. They had power and no trees down from the ice storm.
Mark will go in Monday for his 4th round of chemo. This will be the second time with Avastin. He didn't feel so great after the last infusion, so we hope this one will be better. I've been doing more reading on Mark's type of cancer which only brings more questions. We will meet with the surgeon at UAB again in January so we will have a lot of questions for him. We will also have a repeat CT of the chest, abdomen and pelvis at that time.
Continue to pray for Mark's healing and strength. God bless!!
Mark and I got a little Christmas shopping done earlier today since it is the last day I am off when the kids will be in school and we can get away without them. We didn't finish, but got quite a bit done.
Brent and Kathy made it back to Oklahoma safely. They were relieved to find their house intact. They had power and no trees down from the ice storm.
Mark will go in Monday for his 4th round of chemo. This will be the second time with Avastin. He didn't feel so great after the last infusion, so we hope this one will be better. I've been doing more reading on Mark's type of cancer which only brings more questions. We will meet with the surgeon at UAB again in January so we will have a lot of questions for him. We will also have a repeat CT of the chest, abdomen and pelvis at that time.
Continue to pray for Mark's healing and strength. God bless!!
American Cancer Society Breakfast
The American Cancer Society Breakfast fundraiser will be Saturday, December 15th between 8am and 10am at Longhorns. I think it's just come and go as you want. Tickets are available at the door and it's $5 per person. Just FYI if anyone local is interested in attending.
Thursday, December 13, 2007
December 13
Mark is starting to feel better. The new medicine is definitely helping, but makes him very tired as well. He just wears out much quicker which is frustrating for him. He is excited about the upcoming annual viewing of Christmas Vacation at the Yost's house on Saturday night. Tomorrow will be our Callaway Garden trip.
I have gotten his medical records gathered together to send to MD Anderson. Mark's cousin, Michael, has a connection that will hopefully get us in for a second opinion. Mark's oncology office tried to set up the appointment, but they were told MD Anderson wouldn't accept Mark for a third opinion unless we agreed to do all treatments there or he was considered a treatment failure.
Saturday morning is the fundraiser breakfast for the American Cancer Society if anyone local is interested in attending. I will try to get all the details and post it tomorrow.
Take care everyone and God Bless!!!
I have gotten his medical records gathered together to send to MD Anderson. Mark's cousin, Michael, has a connection that will hopefully get us in for a second opinion. Mark's oncology office tried to set up the appointment, but they were told MD Anderson wouldn't accept Mark for a third opinion unless we agreed to do all treatments there or he was considered a treatment failure.
Saturday morning is the fundraiser breakfast for the American Cancer Society if anyone local is interested in attending. I will try to get all the details and post it tomorrow.
Take care everyone and God Bless!!!
Wednesday, December 12, 2007
December 12
Mark had a good day today. He got a new medicine from the doctor for the diarrhea symptoms and it seems to be helping some. We will keep our fingers crossed. The good news is his appetite is still good and he hasn't lost any weight. Today was busy for him with his office's Dirty Santa party. He enjoyed seeing everyone and getting back into the office. This evening, he took Colton to basketball practice and then we had a quiet evening with the kids before bed. This was the first night that Kathy and Brent have been gone, so it seemed we were missing something. I think the kids are really going to miss having their grandparents here. Hopefully they find that everything in Bartlesville (OK) is still in good shape and they don't have any catastrophes like frozen pipes or fallen trees.
We feel a little guilty enjoying the upper 70 degree weather and up to 80 yesterday. The kids have been outside in shorts.
We are still planning our trip to Callaway Gardens for the Festival of Lights Friday night. The weather should be nice and I don't think it will be too cold for Mark. The cold is definitely starting to bother him some-touching cold objects out of the refridgerator can be painful and of course he is becoming a pro at requesting "no ice" in his drinks. By the time he can tolerate a little cold, it is time for chemo again and we start all over. He is thankful for the days he can order drinks with ice, but they aren't happening very often.
Thanks for all the prayers, support, cards, and phone calls to check on Mark. We really appreciate the outpouring of support. God bless!!!
We feel a little guilty enjoying the upper 70 degree weather and up to 80 yesterday. The kids have been outside in shorts.
We are still planning our trip to Callaway Gardens for the Festival of Lights Friday night. The weather should be nice and I don't think it will be too cold for Mark. The cold is definitely starting to bother him some-touching cold objects out of the refridgerator can be painful and of course he is becoming a pro at requesting "no ice" in his drinks. By the time he can tolerate a little cold, it is time for chemo again and we start all over. He is thankful for the days he can order drinks with ice, but they aren't happening very often.
Thanks for all the prayers, support, cards, and phone calls to check on Mark. We really appreciate the outpouring of support. God bless!!!
Tuesday, December 11, 2007
December 11
Mark went out today for a few outings with his parents. He is still limited in his outings because of the diarrhea. If it weren't for that, he would be feeling pretty good. His activity level the last week and a half has been diminished quite a bit.
Mark's parents are leaving for home tomorrow morning. They have been with us for 2 months now since Mark's diagnosis. As many of you know, Oklahoma is under a pretty severe ice storm and a large part of the state is without power. They feel the need to go home and check on things to make sure pipes aren't frozen and trees aren't down, etc. They have been a big help to us and we will miss them.
The kids continue to stay busy with homework and basketball practice. It seems that it never ends with sports and homework.
Continue to pray for Mark. We appreciate all the support more than you know!!
Mark's parents are leaving for home tomorrow morning. They have been with us for 2 months now since Mark's diagnosis. As many of you know, Oklahoma is under a pretty severe ice storm and a large part of the state is without power. They feel the need to go home and check on things to make sure pipes aren't frozen and trees aren't down, etc. They have been a big help to us and we will miss them.
The kids continue to stay busy with homework and basketball practice. It seems that it never ends with sports and homework.
Continue to pray for Mark. We appreciate all the support more than you know!!
Sunday, December 9, 2007
December 9
Mark has had the roughest week yet since starting chemo. He feels a little better now, but the diarrhea which is pretty unpredictable keeps him from leaving the house. He missed mass this morning and really hasn't been out of the house much all weekend. Hopefully it won't keep us from the Callaway Garden Festival of Lights this weekend or our annual viewing of Christmas Vacation at the Yost's house.
Mark helped with making Christmas cookies tonight. The kids enjoyed cutting out sugar cookies and decorating them. Emily had her own stash of cookies and icing since she ended up licking the knife (which really grosses Colton out) and reusing it on the cookies. Calen and Colton had some pretty and creative designs. Colton even ended up with on OU on one cookie. Go figure!!
The boys had a fun weekend playing at the Brooks' house. Thanks Debbie and Richy for having them. Emily enjoyed the warm weather outside jumping on the trampoline, riding her tricycle and playing with the neighbor kids.
We appreciate everyone's continued support and prayers. God bless you all!!
Mark helped with making Christmas cookies tonight. The kids enjoyed cutting out sugar cookies and decorating them. Emily had her own stash of cookies and icing since she ended up licking the knife (which really grosses Colton out) and reusing it on the cookies. Calen and Colton had some pretty and creative designs. Colton even ended up with on OU on one cookie. Go figure!!
The boys had a fun weekend playing at the Brooks' house. Thanks Debbie and Richy for having them. Emily enjoyed the warm weather outside jumping on the trampoline, riding her tricycle and playing with the neighbor kids.
We appreciate everyone's continued support and prayers. God bless you all!!
Saturday, December 8, 2007
December 8
Mark is continuing to recover from this round of chemo. It has definitely been the worst so far. He has developed the diarrhea and frequently gets nauseated with vomiting. He seems to have the nausea and vomiting more when he doesn't eat frequently. It hasn't been a fun week for him, but he is keeping his head up. He made it in to the office on Friday and spent most of the day up there. Today he has been able to rest some.
It is 76 degrees here in Auburn and beautiful today. The kids have been outside playing which helps with Mark not feeling well.
Take care everyone!!
It is 76 degrees here in Auburn and beautiful today. The kids have been outside playing which helps with Mark not feeling well.
Take care everyone!!
Thursday, December 6, 2007
December 6
Mark had a rough day today. He didn't bounce back from the chemo like in previous weeks and felt very tired and sick all day. He did get out and about a little with his parents in the afternoon, but overall spent most of the day lying around. We are hoping tomorrow will be better.
The kids are staying busy with school and basketball. Mark didn't feel up to taking Calen to practice tonight, so Brent (Mark's father) took Calen to practice. Emily stayed home and helped rub her daddy's back. She gave him a kiss to make him feel better. It was really sweet.
Continue to keep Mark in your prayers. God bless!!
The kids are staying busy with school and basketball. Mark didn't feel up to taking Calen to practice tonight, so Brent (Mark's father) took Calen to practice. Emily stayed home and helped rub her daddy's back. She gave him a kiss to make him feel better. It was really sweet.
Continue to keep Mark in your prayers. God bless!!
Wednesday, December 5, 2007
December 5
Mark finished the third round of chemo today and was unhooked from his infusion around 1 this afternoon. He is still pretty weak and fatigued, but glad to be finished. He insisted on going out tonight for my birthday, so we had dinner with the kids and Mark's parents at Provino's. Dinner was great and we all left feeling very full.
We plan to attend a fund raising breakfast for the American Cancer Society next Saturday (Dec 15th) at Longhorn's. Mark's oncologist and infusion nurses are cooking the meal. Tickets will be $5 per person and are available at the door if anyone local is interested in attending. I think breakfast starts at 9am.
We are hoping Mark is feeling like going in to the office some this week as he enjoys getting back into the routine. We will see how he feels in the morning. He becomes fatigued much easier now, even on his good days.
God bless!!!!
We plan to attend a fund raising breakfast for the American Cancer Society next Saturday (Dec 15th) at Longhorn's. Mark's oncologist and infusion nurses are cooking the meal. Tickets will be $5 per person and are available at the door if anyone local is interested in attending. I think breakfast starts at 9am.
We are hoping Mark is feeling like going in to the office some this week as he enjoys getting back into the routine. We will see how he feels in the morning. He becomes fatigued much easier now, even on his good days.
God bless!!!!
Tuesday, December 4, 2007
December 4
Mark had one of his down days on the chemo. He has been tired and not feeling well, but has managed to eat some. Food still has taste during the chemo, but drinks don't taste right to him (even water). Mark says it's really not something you can describe, so I'll take his word for it. He had a quiet day at home and managed to take Calen out for basketball practice this evening which wiped him out.
We now have to plan everything around chemo week and chemo free week. We are planning to go to Callaway Garden's festival of lights, but will do it next weekend so Mark should be at the top of his game.
Again, thanks to all of you for your prayers, well wishes, calls, cards, and visits. We appreciate everyone's support more than you know. God bless!!!
We now have to plan everything around chemo week and chemo free week. We are planning to go to Callaway Garden's festival of lights, but will do it next weekend so Mark should be at the top of his game.
Again, thanks to all of you for your prayers, well wishes, calls, cards, and visits. We appreciate everyone's support more than you know. God bless!!!
Monday, December 3, 2007
December 3, Chemo number 3
Hi to all!! We are still at the infusion center finishing up Mark's third round of chemo. He gained back the lost weight and everyone was pleased. The other GREAT news was the CEA fell to 4.8 (it was 29 at it's peak). They consider normal to be <3. In addition to the great CEA number, they also added Avastin this round. This is the forth agent and should strangle the blood supply to the tumor and metastatic disease and enable the chemo to work better.
In preparaton for Mark's down time, we had a busy weekend with getting ready for Christmas. We put together the gingerbread choo choo and also decorated the Christmas tree. Mark was also out in the rain last night putting up the lights and outside decoration knowing that it couldn't wait due to the inevitable chemo today.
We had a great weekend with the Sooners dominating Missouri again. GO SOONERS!!!! (That's for you Linda). You will have to drive by our house and see our lawn ornament with the big crimson and cream OU.
Thanks for all the cards, calls and support!! We are blessed with such wonderul family and friends.
In preparaton for Mark's down time, we had a busy weekend with getting ready for Christmas. We put together the gingerbread choo choo and also decorated the Christmas tree. Mark was also out in the rain last night putting up the lights and outside decoration knowing that it couldn't wait due to the inevitable chemo today.
We had a great weekend with the Sooners dominating Missouri again. GO SOONERS!!!! (That's for you Linda). You will have to drive by our house and see our lawn ornament with the big crimson and cream OU.
Thanks for all the cards, calls and support!! We are blessed with such wonderul family and friends.
Thursday, November 29, 2007
Nov 29
Mark continues to do well in his chemo free week. His appetite has been good and he has been able to work some and played a round of golf with his father and some of the graduate students this week. He has remained busy with Calen and Colton starting basketball practice this week.
We took the kids to the Auburn Christmas parade this evening after Ronda got off work and then went out to eat at Chili's. Hopefully we can get some Christmas shopping done and the Christmas tree up this weekend before the next round of chemo on Monday. Mark bought the kids a gingerbread train kit to put together which will be lots of fun.
Thanks to the Bulldog class of 88 reunion committee for the care package. It was great to hear from you and very thoughtful sending the goodies. You have all been such an big help with your cards, emails and constant encouragement. We are hoping Mark will feel like travelling back for the big 20 year this summer, but will play that by ear.
God bless!!
We took the kids to the Auburn Christmas parade this evening after Ronda got off work and then went out to eat at Chili's. Hopefully we can get some Christmas shopping done and the Christmas tree up this weekend before the next round of chemo on Monday. Mark bought the kids a gingerbread train kit to put together which will be lots of fun.
Thanks to the Bulldog class of 88 reunion committee for the care package. It was great to hear from you and very thoughtful sending the goodies. You have all been such an big help with your cards, emails and constant encouragement. We are hoping Mark will feel like travelling back for the big 20 year this summer, but will play that by ear.
God bless!!
Tuesday, November 27, 2007
Nov 27th
Mark was feeling good this morning and went in to the office for the first time since his diagnosis to get work done. He stayed for a good portion of the day. He enjoyed getting back into some form of routine. His appetite is good and he has been able to regain the lost weight from the first chemo. We are still modifying his diet and he is adjusting well. He has some intermittant pains in his abdomen, but seems to be dealing with it without requiring pain medication.
Mark's next chemo is scheduled for December 3rd. We will have another CEA drawn then (that is his cancer marker). We are hoping that it has fallen with the 2 rounds of chemo.
Mark's next chemo is scheduled for December 3rd. We will have another CEA drawn then (that is his cancer marker). We are hoping that it has fallen with the 2 rounds of chemo.
Monday, November 26, 2007
Nov 26
Mark has been feeling better since the weekend. He is having a little bit of abdominal discomfort, but much better than with his last round of chemo. We hope this is a good sign. He has been up and more active recently as well.
All of the family is gone now, with the exception of Mark's parents who are here indefinitely. We gave our Auburn/Alabama football tickets to our nephews who were here visiting and let them go with Calen and Colton to the game. They thoroughly enjoyed it and got a taste of Auburn and it's traditions. After the game, we picked up the boys and took them to Toomer's corner and let them join in the festivities of "rolling Toomer's". Mark and I went to the tailgate for a short while. He enjoyed visiting with his friends and colleagues, but the cold began getting to him and by the time we were leaving he was experiencing the numbness and pain in his fingertips that the doctors warned us about.
We are waiting for Mark's oncologist to set up our referral to MD Anderson. Hopefully in the next month or two we will be able to visit with their doctors in Houston to get yet another opinion and find out if there are any more options for us. We continue to pray for healing and strength and have been very blessed with great friends and family. Mark keeps his prayer card of Saint Peregrine by his bed and reads it daily-thanks so much Debbie!!!
All of the family is gone now, with the exception of Mark's parents who are here indefinitely. We gave our Auburn/Alabama football tickets to our nephews who were here visiting and let them go with Calen and Colton to the game. They thoroughly enjoyed it and got a taste of Auburn and it's traditions. After the game, we picked up the boys and took them to Toomer's corner and let them join in the festivities of "rolling Toomer's". Mark and I went to the tailgate for a short while. He enjoyed visiting with his friends and colleagues, but the cold began getting to him and by the time we were leaving he was experiencing the numbness and pain in his fingertips that the doctors warned us about.
We are waiting for Mark's oncologist to set up our referral to MD Anderson. Hopefully in the next month or two we will be able to visit with their doctors in Houston to get yet another opinion and find out if there are any more options for us. We continue to pray for healing and strength and have been very blessed with great friends and family. Mark keeps his prayer card of Saint Peregrine by his bed and reads it daily-thanks so much Debbie!!!
Friday, November 23, 2007
November 23
Mark had a good day today. He is starting to feel better and seems to have a little more energy. We spent the day with family. Mark got a lot of rest this morning and we took him out for a short midday outing. Mark drove Jenny, our sister-in-law, to Toomer's corner and we let her try the famous lemonade. We then went to Tiger Town and had an outing at Target and Books-A-Million before driving home. Mark got to watch some football games this evening and will be saying goodbye to his twin brother Matt in just a little while. Matt, Angie, Jolene, and Lauren will be leaving this evening on their journey back to Oklahoma City.
We are hoping to make it to the tailgate tomorrow for the big Iron Bowl. Mark is still undecided about attending the game. It will depend on the weather and we'll see how he's feeling.
Thanks to everyone for the prayers and support. We are truly blessed with the best of friends and family.
We are hoping to make it to the tailgate tomorrow for the big Iron Bowl. Mark is still undecided about attending the game. It will depend on the weather and we'll see how he's feeling.
Thanks to everyone for the prayers and support. We are truly blessed with the best of friends and family.
Thursday, November 22, 2007
Nov 22, Thanksgiving
Mark finished the chemo yesterday. His appetite hasn't been great, but he is trying to eat. This morning he woke up feeling nauseated with some vomiting. He has been able to eat since then and his stomach seems to have calmed down some. He got to visit a little with Danny before he left for the airport this morning.
Mark's oldest brother, Shaun, made it in this afternoon with his wife and 3 children. We ate Thanksgiving dinner around 2pm. It was a great meal and we had a good time. We had a total of 18 people. Harris smoked a turkey for us and it was delicious. We also fried a turkey. Steve Swider and Jordan came for dinner. Mark was able to eat a little of all of his favorite dishes and enjoyed the meal. The day has worn him out and he is resting now. He says he just feels very fatigued. Hopefully each day will get better after the chemo.
We hope everyone had a great Thanksgiving. Thanks for all the calls, cards, visits and prayers. Also, thank you Jason and Christy for letting us borrow your air mattress. Finding extra beds for this many has been challenging (especially with the holiday and Iron Bowl this weekend).
God bless!!
Mark's oldest brother, Shaun, made it in this afternoon with his wife and 3 children. We ate Thanksgiving dinner around 2pm. It was a great meal and we had a good time. We had a total of 18 people. Harris smoked a turkey for us and it was delicious. We also fried a turkey. Steve Swider and Jordan came for dinner. Mark was able to eat a little of all of his favorite dishes and enjoyed the meal. The day has worn him out and he is resting now. He says he just feels very fatigued. Hopefully each day will get better after the chemo.
We hope everyone had a great Thanksgiving. Thanks for all the calls, cards, visits and prayers. Also, thank you Jason and Christy for letting us borrow your air mattress. Finding extra beds for this many has been challenging (especially with the holiday and Iron Bowl this weekend).
God bless!!
Tuesday, November 20, 2007
Nov 20, Chemo day
Mark is feeling very puny today with no energy which the doctor stated would probably happen during his chemo. His appetite is not good and he feels nauseated. He continues with the infusion of 5FU and will be finished tomorrow around noon. Hopefully he will start perking up then.
He experienced some oozing from the port this morning with a little blood getting on his clothes. We went to the Cancer Center and they changed the dressing for him.
Mark's good friend from grade school, Danny Blackburn, surprised Mark with a visit today. Danny flew in from Oklahoma and will stay until Thursday morning.
He experienced some oozing from the port this morning with a little blood getting on his clothes. We went to the Cancer Center and they changed the dressing for him.
Mark's good friend from grade school, Danny Blackburn, surprised Mark with a visit today. Danny flew in from Oklahoma and will stay until Thursday morning.
Monday, November 19, 2007
Nov 19, Second round of chemo
Mark went in today for his second round of chemo. He was feeling better today and met with his doctor. He has lost 6 pounds, so we need to try to get that back on him. We are going to work hard at this. Other than the weight loss, the doctor was pleased. His blood counts were great-no anemia or low white count and the liver functions and bilirubin were totally normal along with kidney functions. We felt very blessed to get this news.
The chemo infusion went without a hitch. He is now wearing his 46 hour constant infusion pack and will go back Wednesday to get unhooked. He is feeling a little bit puny as he did with the last infusion. Hopefully by Thanksgiving these effects are worn off and he will be ready for a big feast. He is definitely abandoning the diet for turkey day. We plan to make all of his favorite dishes and the doctor said he could even have a glass of wine.
We spent the evening playing Scene It with the kids, Mark's parents and Mark's twin brother Matt and his crew. It was a lot of fun and Mark got so excited we thought he was going to rip the chemo infusion out of his port.
Thanks Ted and Jean for the ambrosia (?spelling). It is great and Mark is really digging it!!
Continue to pray for Mark's healing and strength. God bless!!
The chemo infusion went without a hitch. He is now wearing his 46 hour constant infusion pack and will go back Wednesday to get unhooked. He is feeling a little bit puny as he did with the last infusion. Hopefully by Thanksgiving these effects are worn off and he will be ready for a big feast. He is definitely abandoning the diet for turkey day. We plan to make all of his favorite dishes and the doctor said he could even have a glass of wine.
We spent the evening playing Scene It with the kids, Mark's parents and Mark's twin brother Matt and his crew. It was a lot of fun and Mark got so excited we thought he was going to rip the chemo infusion out of his port.
Thanks Ted and Jean for the ambrosia (?spelling). It is great and Mark is really digging it!!
Continue to pray for Mark's healing and strength. God bless!!
Saturday, November 17, 2007
Nov 17
Mark is feeling better today. Still with a cough and a little congestion, but no fever. The doctor started antibiotics yesterday and they seem to be helping. He is up and about and watching some football. This morning we went out for our family Christmas picture with the kids. Thanks so much Tracy for taking the pictures.
We are gearing up for chemo on Monday and hoping he does as well with this treatment as he did the last.
Mark's twin brother, Matt, is coming in Sunday for the Thanksgiving holiday. He will be bringing his daughter, Jolene, and Angie (his fiance') and her daughter Lauren. On Wednesday, Mark's older brother Shaun will be here with his wife Jennie and their children, Chris, Josh and Katie. We are looking forward to the visit with family.
We are gearing up for chemo on Monday and hoping he does as well with this treatment as he did the last.
Mark's twin brother, Matt, is coming in Sunday for the Thanksgiving holiday. He will be bringing his daughter, Jolene, and Angie (his fiance') and her daughter Lauren. On Wednesday, Mark's older brother Shaun will be here with his wife Jennie and their children, Chris, Josh and Katie. We are looking forward to the visit with family.
Friday, November 16, 2007
Nov 16
Hi everyone!! Mark is still fighting off a cold and a slight cough today. His temperature was normal to 99.5 yesterday, but up to 100.5 today. He feels stuffy and congested. We put a call in to the oncology office this morning and are awaiting their advise. Mark continues to take his megadoses of vitamin C among others and we are hoping he can kick this before his scheduled Monday treatment. He says if it weren't for this cold, he's feel "right as rain". We had our follow up with the surgeon today for the port placement. Everything has healed nicely.
I went to work for the first full day yesterday. It was quite busy with stacks of things waiting on me and working straight through lunch. I was quite exhausted by the end of the day and glad to get home.
The kids are doing well. Football is over and we will have only a short breather between it and basketball.
God bless!!
I went to work for the first full day yesterday. It was quite busy with stacks of things waiting on me and working straight through lunch. I was quite exhausted by the end of the day and glad to get home.
The kids are doing well. Football is over and we will have only a short breather between it and basketball.
God bless!!
Wednesday, November 14, 2007
Nov 14th
Mark was doing so well yesterday, but last evening he developed some sinus problems. He felt a little worse this morning. We've given him some OTC sinus medication to help with symptoms. He has developed a slight fever of 100.3 this afternoon. If the temp goes above 100.5, we will have to call the oncologist office. He is now pushing fluids to try and hydrate and we are hoping he will kick this quickly so as not to delay the next round of chemo scheduled for Monday.
Thanks for all the prayers and support once again.
Thanks for all the prayers and support once again.
Tuesday, November 13, 2007
Nov 13
Mark is beginning to feel better again. He did not require pain medicine today and was acting more like his old self. He actually went in to the office for a bit to check his mail and listen to his voice mail. It was nice to see him getting out and feeling better and he enjoyed visiting with his colleagues in the office. It was definitely his best day since the start of chemo. Erin and Lee Colquitt brought over some ratatouille for Mark which was a big hit. It was very fitting with his diet and we'll definitely need the recipe. Thank you!! Also a big thanks to Duane and Stacy Brandon for all the vegetarian food, groceries and recipes. It has been very helpful.
Brent and Kathy, Mark's parents, continue to stay and help out. They installed a new soap dispenser for the kitchen sink and we've done a little gutter cleaning as well. They have been very helpful with homework, cooking, cleaning and just about anything else you can imagine.
Brent and Kathy, Mark's parents, continue to stay and help out. They installed a new soap dispenser for the kitchen sink and we've done a little gutter cleaning as well. They have been very helpful with homework, cooking, cleaning and just about anything else you can imagine.
Monday, November 12, 2007
Nov 12
Mark is doing well. He is still having pain, but the Lortab makes him more comfortable and he is getting up and about more. We made is to church Sunday and even took him out to eat for lunch after the service. Today Mark had lunch with Lee Colquitt and enjoyed the outing. He received a phone call from T.O., his former professor from OU who is now in Minnesota. Andy has also been such a big help and even went and picked up the boat for us. Thanks!!
The kids all got flu shots over the weekend. Emily only cried a bit and was much braver than I thought she'd be. Both Calen and Colton did well. Now we are all immunized to protect Mark from getting sick.
Mark has a followup appointment with the surgeon on Friday and chemo again on Monday. We scheduled family Christmas pictures for Saturday, so hopefully it will be timed just right and Mark will be feeling well.
Keep praying for Mark. There is power in prayer.
God bless!!
The kids all got flu shots over the weekend. Emily only cried a bit and was much braver than I thought she'd be. Both Calen and Colton did well. Now we are all immunized to protect Mark from getting sick.
Mark has a followup appointment with the surgeon on Friday and chemo again on Monday. We scheduled family Christmas pictures for Saturday, so hopefully it will be timed just right and Mark will be feeling well.
Keep praying for Mark. There is power in prayer.
God bless!!
Friday, November 9, 2007
Nov 9
Mark continues to have the abdominal pain. We called Dr. Farmer's office and they did not feel it was worrisome. It is probably the primary tumor pressing on a nerve and we hope with more chemo, the tumor will shrink and the pain will subside. He is more comfortable today thanks to Lortab. It is controlling the pain and he is in better spirits. Mark had a long chat with John, a long time childhood friend and former Bruin teammate, which cheered him up. He also received a very inspiring email from Dr. Ederington, and phone calls from Dr. Stanhouse and Christoph (I mean Dr. Hinkleman) today.
We are continuing to find new dishes to make on Mark's restrictive diet. It is becoming somewhat easier, but still poses many challenges for us. His appetite has been a little better today as well.
Mark and I feel very blessed to have such great family and friends supporting us through this difficult journey. Thanks again for all the support and wonderful comments on the blog.
God bless!!!!
We are continuing to find new dishes to make on Mark's restrictive diet. It is becoming somewhat easier, but still poses many challenges for us. His appetite has been a little better today as well.
Mark and I feel very blessed to have such great family and friends supporting us through this difficult journey. Thanks again for all the support and wonderful comments on the blog.
God bless!!!!
Thursday, November 8, 2007
Nov 8, Day after first chemo
Mark is still feeling bad today. We were hoping for him to feel better. He is having some abdominal pain and required some pain medication last night and again today. Luckily it makes him sleepy and he has been able to get some rest. His appetite is only fair still. Hopefully it will improve later in the week. Chemo is certainly hard on the body.
Mark's parents, Brent and Kathy, are still here and helping with everything from grocery shopping to homework and dropping off and picking up kids. The kids have certainly enjoyed having their grandparents here for an extended visit.
Continue to keep Mark in your prayers. The comments, cards, visits and calls are uplifting for him. We even have a card from the University of Alabama (thanks Linda) on the dresser.
Mark's parents, Brent and Kathy, are still here and helping with everything from grocery shopping to homework and dropping off and picking up kids. The kids have certainly enjoyed having their grandparents here for an extended visit.
Continue to keep Mark in your prayers. The comments, cards, visits and calls are uplifting for him. We even have a card from the University of Alabama (thanks Linda) on the dresser.
Wednesday, November 7, 2007
Nov 7, Finished first cycle of chemo
Mark finished his first complete chemo cycle today around noon. We went in to the infusion center and had them disconnect his chemo. Mark continues to feel puny and a little ill. Most of this stems from abdominal cramping and pain, but luckily no diarrhea. The chemo nurse feels the cramping should subside today, if not there is a medicine they can try to help him with the next infusion. We've had a quiet day around the house. Mark's appetite hasn't been great, but we've managed to get a few things down him and his mom and dad are out now buying King Crab legs to fix for dinner.
Calen has a football game tonight and Mark is one of the assistant coaches. I know Mark wants to go badly, but I'm not sure he'll make this one. It is cool today and will be much colder tonight. We'll play it by ear.
Calen has a football game tonight and Mark is one of the assistant coaches. I know Mark wants to go badly, but I'm not sure he'll make this one. It is cool today and will be much colder tonight. We'll play it by ear.
Tuesday, November 6, 2007
Nov 6, 2nd day of chemo
Mark is having his roughest day so far. He is on the continuous infusion of the 5FU and woke feeling nauseated and puny. He had some breakfast, but hasn't felt like eating since. He is still in good spirits considering the constant nausea. Ronda went to work for a few hours this morning, but is back home taking care of Mark this afternoon. Hopefully this is a temporary effect. His 5FU should be finished around noon tomorrow.
Matt (Mark's twin brother) had his colonoscopy yesterday and it was normal which is a relief for everyone. His sister and older brother are scheduled for their procedures soon as well.
Colton's team lost their game last night. Colton had a great game with several tackles and got his name called over the loud speaker which was exciting. They received their second place trophies and we took a lot of pictures after the game.
Again, thank you to everyone for your prayers, calls, cards and visits. Also a huge thank you to The Orthopaedic Clinic who have overwhelmed us with generosity and provided several meals. We cannot say thank you enough.
Matt (Mark's twin brother) had his colonoscopy yesterday and it was normal which is a relief for everyone. His sister and older brother are scheduled for their procedures soon as well.
Colton's team lost their game last night. Colton had a great game with several tackles and got his name called over the loud speaker which was exciting. They received their second place trophies and we took a lot of pictures after the game.
Again, thank you to everyone for your prayers, calls, cards and visits. Also a huge thank you to The Orthopaedic Clinic who have overwhelmed us with generosity and provided several meals. We cannot say thank you enough.
Monday, November 5, 2007
Nov 5, First Day of Chemo
Mark had his first dose of chemo today at the infusion center in Opelika. He was pretty nervous going in, but became more relaxed and was giving the infusion nurse a lot of his sarcastic humor. She took it in stride and gave it right back to Mark, so I think they're a match made in heaven. haha. He received a medicine for nausea first and then some steroids. The chemo followed with oxaliplatin and leucovorin (not really chemo, but has a synergistic effect with the 5FU). They hooked up the 5FU last and let him get a little to make sure he wouldn't have an allergic reaction. He is now hooked up to a fanny pack with constant infusion of 5FU for 46 hours. He will return to the infusion center Wednesday to disconnect and we are done for 2 weeks.
He tolerated the chemo well. No nausea or side effects. The side effects are cumulative, so he may at some time develop them, but we're optimistic that he will continue to do well. He is eating well this afternoon and plans to make it to Colton's championship game tonight at the High School stadium (the "Shugar Bowl"- named after Shug Jordan, a former Auburn football coach, for those of you who aren't from Auburn). He is prohibited from getting cold or even drinking cold beverages or food for 3 days into treatment each 2 weeks. He must wear gloves to reach into the freezer and continue to stay warm. Hopefully it won't be too cold tonight at the game, but if you see Mark out dressed like an Eskimo, it is for that reason.
We requested another CEA (cancer marker) to be drawn today so we will have a data point at the start of therapy and it was 29. It was 20 at diagnosis. This is what they will follow along with CT/PET scans to see if he is responding to therapy.
He tolerated the chemo well. No nausea or side effects. The side effects are cumulative, so he may at some time develop them, but we're optimistic that he will continue to do well. He is eating well this afternoon and plans to make it to Colton's championship game tonight at the High School stadium (the "Shugar Bowl"- named after Shug Jordan, a former Auburn football coach, for those of you who aren't from Auburn). He is prohibited from getting cold or even drinking cold beverages or food for 3 days into treatment each 2 weeks. He must wear gloves to reach into the freezer and continue to stay warm. Hopefully it won't be too cold tonight at the game, but if you see Mark out dressed like an Eskimo, it is for that reason.
We requested another CEA (cancer marker) to be drawn today so we will have a data point at the start of therapy and it was 29. It was 20 at diagnosis. This is what they will follow along with CT/PET scans to see if he is responding to therapy.
Saturday, November 3, 2007
November 3rd
Mark loved the card from Susan Crain-it made him laugh uncontrollably. It was a great card and great advise for both of us. Thanks Susan. Mark truly appreciates all the cards, calls and visits. He has all of his cards on the dresser and he likes to look at all of them. They continually remind him of all of your support and prayers. He has a special card that Colton made him the night the boys found out about dad's diagnosis and Mark carries it with him to all of his appointments and procedures (along with wearing his lucky shirt). I'm sure the doctors are wondering if Mark has any other clothes, but we really don't care.
God bless!!!!
God bless!!!!
Friday, November 2, 2007
Nov 2, Visit with Dr. Farmer
We saw Dr. Farmer this morning and decided on the chemo regimen. We will have to wait until Monday to get started. There are 2 meds that will be infused during a 4-5 hour stay at the infusion center, but the third agent will have to run over 46 hours. Mark will get to go home wtih a pump (like a fanny pack) that will continually infuse the chemo. He will have to return on Wednesday for the nurses to disconnect the chemo (which is why they don't start this chemo regimen on Thursdays or Fridays because of the weekend). Dr. Farmer hopes to start the 4th chemo agent at the end of November.
Mark is in good spirits knowing now that there is a plan and now a timeline to get started. We were really hoping we could go ahead with chemo today, but Monday will be here before we know it. We hope there won't be any ill side effects from the chemo. Dr. Farmer talked to us about diarrhea, nausea/vomiting, sore mouth, cold intolerance and possibly hair loss. Mark didn't seem to mind so much on the hair loss since he's already getting pretty thin on top.
Yesterday Mark went out to the AU club and watched some of the PGA qualifying tournament. It was a beautiful day for watching golf.
Mark is in good spirits knowing now that there is a plan and now a timeline to get started. We were really hoping we could go ahead with chemo today, but Monday will be here before we know it. We hope there won't be any ill side effects from the chemo. Dr. Farmer talked to us about diarrhea, nausea/vomiting, sore mouth, cold intolerance and possibly hair loss. Mark didn't seem to mind so much on the hair loss since he's already getting pretty thin on top.
Yesterday Mark went out to the AU club and watched some of the PGA qualifying tournament. It was a beautiful day for watching golf.
Wednesday, October 31, 2007
October 31, Halloween
Thanks for all of your supportive comments, calls and cards. They've been a great help. Mark had a good day today. He is having some discomfort from the port placement and bruising at the site, but it looks good. He hasn't really taken any pain meds and is just toughing it out. He is getting more used to his restrictive diet and is eating well. We took him out to Chappy's deli for lunch and had a great salad.
Mark took the kids out trick-or-treating later in the evening. The kids had a blast. This is the first year Emily got the concept and she was in heaven. We took pictures and the kids got lots of candy. I think the trick-or-treating wore Mark out a bit, so we came home to rest.
We are anxiously awaiting our visit Friday with Dr. Farmer. Hopefully the bilirubin will be down and we can get started on the chemo. Waiting is the hardest part right now.
Mark's parents are still here helping out which has been a blessing.
Mark took the kids out trick-or-treating later in the evening. The kids had a blast. This is the first year Emily got the concept and she was in heaven. We took pictures and the kids got lots of candy. I think the trick-or-treating wore Mark out a bit, so we came home to rest.
We are anxiously awaiting our visit Friday with Dr. Farmer. Hopefully the bilirubin will be down and we can get started on the chemo. Waiting is the hardest part right now.
Mark's parents are still here helping out which has been a blessing.
Tuesday, October 30, 2007
Port placed but bili still too high
Hi everyone!! Mark has his port placed early this morning. He is still sleeping from the sedatives. The procedure went well, but he will be sore for a while. We will have to start Coumadin to keep the port from clotting. We also had labs drawn today. Mark's bilirubin is still a little too high to start chemotherapy, but it is coming down. We will keep out appointment this Friday with Dr. Farmer and if labs permit, hopefully chemo on Monday.
Mark's chemo will initially start with 3 medicines. With one of these, he will have to avoid cold so it's a good thing we live in the south. They will eventually start a 4th agent, but we cannot start it until 4-6 weeks after this surgery today. It has the side effect of delayed wound healing which is why they will wait on this.
Mark went to Colton's football game last night and was excited to see Colton play such a remarkable game. He made several great tackles and their team won in overtime. They now advance to the playoffs and Colton is excited that this will be played in the High School stadium.
So far, Mark has continued to coach Calen's football team. He is more on the sidelines now, but he refuses to stop these important activities.
Mark's chemo will initially start with 3 medicines. With one of these, he will have to avoid cold so it's a good thing we live in the south. They will eventually start a 4th agent, but we cannot start it until 4-6 weeks after this surgery today. It has the side effect of delayed wound healing which is why they will wait on this.
Mark went to Colton's football game last night and was excited to see Colton play such a remarkable game. He made several great tackles and their team won in overtime. They now advance to the playoffs and Colton is excited that this will be played in the High School stadium.
So far, Mark has continued to coach Calen's football team. He is more on the sidelines now, but he refuses to stop these important activities.
Monday, October 29, 2007
Mark meets with surgeon (Dr. Lock)
Mark met with Dr. Lock again today for his post operative checkup. He is healing nicely. We also scheduled a port a cath placement for tomorrow which will be done as an outpatient. This will allow Mark to get his chemotherapy. We haven't been able to start chemo yet because the bilirubin count is too high. They will recheck the blood work tomorrow and if it has improved, we will be starting therapy soon. We have an appointment with the local oncologist, Dr. Farmer, on Friday.
Mark is in good spirits overall. He has changed his diet a lot and is mostly vegetarian now. Red meats cause a lot of colon inflammation, so we are doing some dietary modifications to help him heal.
We'd like to say Thank You to everyone for all the love and support you've given. It really means a lot to Mark and all of us. We have been blessed with such great friends and family. Continue to pray for Mark.
Mark is in good spirits overall. He has changed his diet a lot and is mostly vegetarian now. Red meats cause a lot of colon inflammation, so we are doing some dietary modifications to help him heal.
We'd like to say Thank You to everyone for all the love and support you've given. It really means a lot to Mark and all of us. We have been blessed with such great friends and family. Continue to pray for Mark.
Friday, October 26, 2007
10/26/07 Results of the latest CT scan
When Mark spoke with the oncology group at UAB yesterday, they ran another CT scan. The results came back today. They saw only one mass in the colon. There are the lesions on the peritoneal wall, and some lymph nodes. They did not indicate how many lymph nodes. The scan also revealed a cyst on the liver. The UAB group didn't think it was cancer, but they will watch it for any kind of development. The plan remains the same.
10/25/07 Meeting with the Oncology Team
Mark, Ronda, Matt, Mom, & Dad met with the oncology team today to discuss Mark's treatment. The team was very open and answered every one's questions and you can imagine that 2 PhDs, 2 PAs and one of NASA's first rocket scientists was quite the QA session!
Mark will first undergo chemo treatments to try to shrink the tumor. The surgeon wants to go in for another colonoscopy and make sure that he is only dealing with one cancerous tumor. The oncologist wanted Mark's liver enzymes down a little more before beginning the treatments. The chemo will likely start in a week. In the mean time, Mark will have a port-a-cath inserted to aid in administering the chemo.
The chemo treatments will be a 4 hour sessions every other week. To begin, the oncologist will use only chemo, but when Mark's laproscopic surgery incisions heal, the doctor will likely add Avastin to the treatments. The oncology team believes it will take 4 - 6 treatments to shrink the tumor. They will run a CAT scan around this time and determine if the tumor has shrunk enough to run another colonoscopy. This puts us at the end of December or into January next year.
In the future, the oncology team also discussed doing a peritoneal wash with the chemo. They say this is very effective for getting rid of those small lesions across the peritoneum.
Mark will first undergo chemo treatments to try to shrink the tumor. The surgeon wants to go in for another colonoscopy and make sure that he is only dealing with one cancerous tumor. The oncologist wanted Mark's liver enzymes down a little more before beginning the treatments. The chemo will likely start in a week. In the mean time, Mark will have a port-a-cath inserted to aid in administering the chemo.
The chemo treatments will be a 4 hour sessions every other week. To begin, the oncologist will use only chemo, but when Mark's laproscopic surgery incisions heal, the doctor will likely add Avastin to the treatments. The oncology team believes it will take 4 - 6 treatments to shrink the tumor. They will run a CAT scan around this time and determine if the tumor has shrunk enough to run another colonoscopy. This puts us at the end of December or into January next year.
In the future, the oncology team also discussed doing a peritoneal wash with the chemo. They say this is very effective for getting rid of those small lesions across the peritoneum.
Wednesday, October 24, 2007
10/24/07 Great NEWS!!!!!!!
Mark had his scans today. They can't find the cancer anywhere except the colon. Even the lesions that the surgeon found on the peritoneal wall were so small that they didn't show up on the PET scan. This is great news.
Mark has an appointment to meet the surgeon and oncologist at UAB in the morning. They will begin discussing his treatments and whether or not he is a surgical candidate. No one can be sure until they talk with the treatment team...but the lack of metastases is a good sign!
Before getting the results, Mark was feeling good enough to play a round of golf with Matt, Dad, and some of his colleagues from work.
Mark has an appointment to meet the surgeon and oncologist at UAB in the morning. They will begin discussing his treatments and whether or not he is a surgical candidate. No one can be sure until they talk with the treatment team...but the lack of metastases is a good sign!
Before getting the results, Mark was feeling good enough to play a round of golf with Matt, Dad, and some of his colleagues from work.
Tuesday, October 23, 2007
10/23/07 A day off, Mark goes into work.
Feeling really good, Mark gets up, showers and brings Matthew up to campus. Ronda scheduled a PET scan and a CAT scan for Mark at Opelika hospital. The UAB team asked that they get the tests at home and have the results sent to them. It seems like a good idea, at least things are moving.
Mark will also have a blood test to check and see if his liver enzymes are returning to normal. At the same time they are going to test for the markers suspected in the genetic disorder. Matt is also going to have the genetic test. If a marker is identified then the close relative can be tested for that particular maker.
Mark will also have a blood test to check and see if his liver enzymes are returning to normal. At the same time they are going to test for the markers suspected in the genetic disorder. Matt is also going to have the genetic test. If a marker is identified then the close relative can be tested for that particular maker.
10/22/07 Mark's colonoscopy
Mark is actually feeling better and has an appetite for the first time in a while. Which stinks, since he can't eat until after the procedure which isn't scheduled until 1:00. Everyone knew he felt better though because he was giving them hell for eating in front of him when he couldn't eat!
The procedure went well and they were able to locate a mass in the sigmoid colon. The mass was large enough that they were not able to get the scope past is. The doctors to another biopsy to double check the first diagnosis.
The returned to Auburn where Mark ate a good dinner and fell asleep in his favorite chair.
The procedure went well and they were able to locate a mass in the sigmoid colon. The mass was large enough that they were not able to get the scope past is. The doctors to another biopsy to double check the first diagnosis.
The returned to Auburn where Mark ate a good dinner and fell asleep in his favorite chair.
10/22/07
Eugenie and Angie head out in the morning, leaving Mark with a little more room to breathe! And a little more privacy to work on the cleanse he has to do to prepare for the colonoscopy.
The cleanse actually helped Mark to feel better. Maybe getting all of that crap (no pun intended) out from where the stint opened the bile duct was a good thing. But that's just this computer person's speculation, for the medical opinion you should ask Matt or Ronda!
The cleanse actually helped Mark to feel better. Maybe getting all of that crap (no pun intended) out from where the stint opened the bile duct was a good thing. But that's just this computer person's speculation, for the medical opinion you should ask Matt or Ronda!
10/21/07 OU beats Iowa State
Mark is feeling less pain from the procedure, but swears that the vitamins Ronda feed him did more damage that good! He actually makes it up and eats for the first time in a while.
Some of the physical therapists that work with Ronda came by and did the yard work. Some other co-workers came by and brought trays and trays of food. The gestures were unbelievable and the family was very grateful.
Mark actually did get up to come out and watch the game. He ate some of the sandwich wraps that had been brought by, and after OU won, he felt well enough to eat 2 helpings of lasagna! That of course was a mistake, given his lack of eating form close to a week, but eventually he felt better.
Some of the physical therapists that work with Ronda came by and did the yard work. Some other co-workers came by and brought trays and trays of food. The gestures were unbelievable and the family was very grateful.
Mark actually did get up to come out and watch the game. He ate some of the sandwich wraps that had been brought by, and after OU won, he felt well enough to eat 2 helpings of lasagna! That of course was a mistake, given his lack of eating form close to a week, but eventually he felt better.
10/19/07 A day without a procedure
Everyone is feeling a bit frustrated. Mark is in pain from the previous day's procedure. Ronda had received a call from Dr. Farmer while Mark was being worked on and the doctor said that Mark should be having his colonoscopy and PET scan now too. Well no one had communicated that and nothing was scheduled or prepped. Ronda was also suppose to meet the oncologist at UAB after the procedure yesterday, but that didn't happen.
Ronda called the UAB oncologist and she told her that she had just received Mark's folder and she needed to review it. She eventually got back to Ronda and they scheduled a colonoscopy for Monday the 22nd.
Mark tired to get up and interact, however he was feeling weak (he hadn't really eaten in about a week) and he was in pain.
Friday also brought the arrival of Sue (Ronda's Mom) and Shaun (Mark's older brother).
Ronda called the UAB oncologist and she told her that she had just received Mark's folder and she needed to review it. She eventually got back to Ronda and they scheduled a colonoscopy for Monday the 22nd.
Mark tired to get up and interact, however he was feeling weak (he hadn't really eaten in about a week) and he was in pain.
Friday also brought the arrival of Sue (Ronda's Mom) and Shaun (Mark's older brother).
10/18/07 Mark gets a stint
Mark originally saw the surgeon because he was jaundiced. At this point he still was. We don't have pictures, and you wouldn't believe how yellow he looked. If you remember the child's toy "Glow Worm" that almost gives you a picture.
The surgeon in Opelika set up a procedure with a Gastroenterologist at UAB. The procedure required them to go in through the mouth, down the esophagus, through the stomach, into the intestines and into the bile duct. The procedure took about 1 hour and mostly went off without a hitch. They did have to cut some to get the stint in, and as a result Mark woke up in pain. They quickly gave him so morphine. Based on his low liver functioning, Mark slept for quite some time after that. He finally woke, and was released.
During the procedure Ronda called the Dr. Farmer back in Opelika. She was told that the biospy typed Mark's cancer as Colon Cancer and it was mucinous adenocarcinoma. It is rare, only about 11% of colon cancers. The doctor's also suspect that there is a genetic factor involved. Only about 5% of colon cancers have a genetic cause. If it is genetic there is a 50% chance that near realative (parents, siblings, children) could have inheirited the same genetic condition. Everyone is begging Matt, Mark's genetically identicall twin, to get tested immediately!
We drove back to Auburn. The four of us not on morphine stopped to get some lunch. At this point Angie decided that Mark would be more comfortable if he could lay his chair back all the way. So, she went into the luggage space of the car and move the luggage around until she clear a 2 x 3 foot space. She then squeezed into and rode the entire 2 1/2 hours home curled up in the back. Mark was much more comfortable, and he was able to sleep most of the way home. I think we now also know what Matt sees in Angie!
The surgeon in Opelika set up a procedure with a Gastroenterologist at UAB. The procedure required them to go in through the mouth, down the esophagus, through the stomach, into the intestines and into the bile duct. The procedure took about 1 hour and mostly went off without a hitch. They did have to cut some to get the stint in, and as a result Mark woke up in pain. They quickly gave him so morphine. Based on his low liver functioning, Mark slept for quite some time after that. He finally woke, and was released.
During the procedure Ronda called the Dr. Farmer back in Opelika. She was told that the biospy typed Mark's cancer as Colon Cancer and it was mucinous adenocarcinoma. It is rare, only about 11% of colon cancers. The doctor's also suspect that there is a genetic factor involved. Only about 5% of colon cancers have a genetic cause. If it is genetic there is a 50% chance that near realative (parents, siblings, children) could have inheirited the same genetic condition. Everyone is begging Matt, Mark's genetically identicall twin, to get tested immediately!
We drove back to Auburn. The four of us not on morphine stopped to get some lunch. At this point Angie decided that Mark would be more comfortable if he could lay his chair back all the way. So, she went into the luggage space of the car and move the luggage around until she clear a 2 x 3 foot space. She then squeezed into and rode the entire 2 1/2 hours home curled up in the back. Mark was much more comfortable, and he was able to sleep most of the way home. I think we now also know what Matt sees in Angie!
10/17/07 Wednesday Mark goes home
Mark and Ronda are visited by Dr. Farmer, the oncologist in the Opelika hospital. They discuss how to move forward with Mark's plan of treatment, and then they release him.
Matt, Eugenie (Mark's twin brother and older sister), and Angie (Matt's fiancee) fly into Birmingham and drive to Auburn.
Wednesday night is football night for Calen, and Mark is the one of the coaches. Even thought he is less than 24 hours out of surgery, we all head out to the game. Unfortunately Calen suffered his first loss in two years.
After the football game, Mark and Ronda discuss with the boys that Daddy is sick and he has something called cancer. Calen fully comprehended what cancer is, and Colton realized that it was serious. Although scared the boys are brave and are remaining strong.
Matt, Eugenie (Mark's twin brother and older sister), and Angie (Matt's fiancee) fly into Birmingham and drive to Auburn.
Wednesday night is football night for Calen, and Mark is the one of the coaches. Even thought he is less than 24 hours out of surgery, we all head out to the game. Unfortunately Calen suffered his first loss in two years.
After the football game, Mark and Ronda discuss with the boys that Daddy is sick and he has something called cancer. Calen fully comprehended what cancer is, and Colton realized that it was serious. Although scared the boys are brave and are remaining strong.
Later that night Mark, Ronda, Matt, Angie, and Eugenie drive to Birmingham for Mark's procedure the next morning. We drove Mom and Dad's new car...and a good thing too, it has a navigation system and boy was it useful!
10/16/07 More news and the kids come to visit.
Mom and Dad left the hospital Tuesday night to pick up the kids. While they were gone, the surgeon visited and informed Mark and Ronda that the cancer was at Stage IV. At this point we don't know where the primary tumor is or how widespread the cancer is. We have been told that by definition if the cancer is on the peritoneum then it is stage IV.
Mom and Dad bring the kids to visit. Calen asks for the first time, "is Daddy going to die?". Mark doesn't even hesitate in answering, "not if I have anything to say about it!"
Mom and Dad bring the kids to visit. Calen asks for the first time, "is Daddy going to die?". Mark doesn't even hesitate in answering, "not if I have anything to say about it!"
10/16/07 Ronda finds out Mark has Colon Cancer
Mark went into the Opelika hospital on Tuesday morning. They rolled him into surgery around 1:00. 45 minutes into the surgery someone came to the waiting room and escorted Ronda, Mom, and Dad to a conference room. Ronda knew it was bad. She had watched several other people be taken out of the room into the hallway and given their news.
She knew the news was bad. It was then that the doctor came in and told everyone that Mark had colon cancer. He believed the gall bladder was healthy. He did not remove the gall bladder, rather he biopsied a couple of lesions he found on the peritoneal wall. The surgeon told Ronda that Mark was in recovery and that he had been told about the cancer.
She knew the news was bad. It was then that the doctor came in and told everyone that Mark had colon cancer. He believed the gall bladder was healthy. He did not remove the gall bladder, rather he biopsied a couple of lesions he found on the peritoneal wall. The surgeon told Ronda that Mark was in recovery and that he had been told about the cancer.
Ronda thinks he has jaundice
The next week Ronda thought Mark looked jaundiced, so she brought him into her office and ran some labs. The liver proteins came back much higher than they should be. They consulted a surgeon who ran an abdominal CAT scan. He believed that there was a gall stone blocking the bile duct. He didn't see it on the scan, but he didn't see anything. He believed it was just gall bladder disease. They scheduled Mark's surgery for October 16th so that Mom and Dad could come to Auburn and help get the kids to school, etc.
Goes to the doctor
The first week of October Mark wasn't feeling well. He went to the doctor and they thought he had an infection. They prescribed some antibiotics.
Getting out information
It seems as if time has stopped and at the same moment time is flying by. Everyone is anxious for the doctors to gain more knowledge and begin treatments. It seems as if they are moving slow, but here we are only a week from knowing that Mark has cancer.
We're setting up this blog to help everyone get the latest information as quickly as we can. We know that we have so many family members and friends out there praying for Mark and our family, and wanting the latest news. We hope this forum will be a good way to communicate that to you. We can't thank you enough for all of you thoughts and prayers. We know that it is through your many prayers that Mark will find the strength to fight this horrible disease.
My new nickname for Mark is "Mr. Outlier". For those of you familiar with statistics you know what that means. For those who aren't, it basically means that he is going to be the reason that statisticians can never say anything is 100%!
The blog is being formed today and we will post the history as it has come to us. In the future we will post the new test results and progress as we know it. Take care and bless you all.
We're setting up this blog to help everyone get the latest information as quickly as we can. We know that we have so many family members and friends out there praying for Mark and our family, and wanting the latest news. We hope this forum will be a good way to communicate that to you. We can't thank you enough for all of you thoughts and prayers. We know that it is through your many prayers that Mark will find the strength to fight this horrible disease.
My new nickname for Mark is "Mr. Outlier". For those of you familiar with statistics you know what that means. For those who aren't, it basically means that he is going to be the reason that statisticians can never say anything is 100%!
The blog is being formed today and we will post the history as it has come to us. In the future we will post the new test results and progress as we know it. Take care and bless you all.
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